BUY A NOTEBOOK

Take it with you every time you go to a Doctor's appointment. Take notes. Write everything down, even the things that you think you already understand. You are getting so much information and you cannot retain it all. Write down every drug that has been prescribed. When you go from one Doctor to the next, they will need this information.

Write down questions. There is no such thing as a stupid question when it comes to someone's health.

I bought my notebook in the airport bookstore when we were waiting for the red-eye after we got the first call about mom being sick. In one end, I wrote down everything I wanted her to know before she died. In the other end I took all of the notes when speaking to Doctors, Nurses, Social Workers. I kept it in my purse and carried it everywhere until the day she died.